Giving Back…

So I talked to Dr. Levinson about my in-class dilemma the other day. He said that there are times and places when disclosing one’s illness becomes comfortable and even necessary, and that a classroom filled with my peers might not have been the best venue. I agreed with him, but our conversation did beg an important question. I wanted to hear from the veteran doctor about the various patients he has treated over the years. I guess what I wanted to know was whether or not there was truth the what my classmates were saying about mental illness. Is the prognosis for all mentally ill patients dire and dark? Am I an anomaly? Are we all just waiting for me to slip back into psychosis one day?

Thankfully, the doctor alleviated my concerns. He said that the type of patients one treats depends on where he practices. When he was practicing at Psych Rehab, where I started my treatment, Levinson saw mostly patients with negative symptoms which include lack of motivation, improper hygiene and a great deal of what he termed deterioration. He said that with each episode, the brain can recoil from the trauma which causes patients with deterioration to come back a shell of their former selves. Patients that have had ten or twelve episodes can no longer function because of the trauma to the brain. Levinson said that I have never shown any signs of deterioration, that my brain is in tacked and that I shouldn’t ever experience any negative symptoms.

To answer the more important question, the doctor said that since he started his private practice, he has seen many patients like me, that recover completely with therapy and medication. “You are not an anomaly, Josh,” he assured me. I felt great hearing that. He said that about one-third of his patients recover completely, one-third recover partially, and one-third have a hard time functioning. I was glad that he could put me up against other patients he had treated and give me a realistically good prognosis. The clients I have seen at Rehab frighten me. They are disheveled and dirty and often mumble incoherently to themselves. I was glad to know that in time, I would not end up like them.

I met with my medication doctor yesterday and he informed me that he is doing research on individuals coping well with their diagnoses. He invited me to come and speak to a group of Psych residents who have had limited contact with patients with mental illness. Most of their training has been in methodology and research, so to hear a real patient talk about his experiences will be beneficial to them. I felt honored that the doctor would consider me for this talk. He told me that I have a good handle on things and that I am very intelligent and articulate about my past symptoms and my present state. I jumped at the offer. I can’t wait. It is my way of giving back to the Psychiatric Community that served me so completely and effectively over the years.

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1 Comment »

  1. Crazy Mermaid Said:

    Bravo to you for agreeing to talk about your experiences and about talking with the professor. BTW, there is an organization called National Alliance On Mental Illness (NAMI) that has a program where mentally ill people go out and speak in public forums such as schools, etc. about what it’s like to have a mental illness. The program is called In Our Own Voice (IOOV). I’ve been speaking as part of this program for several months now, and I like the fact that we are paired with another person with mental illness and I like the comfort of a pre-set format (with plenty of time for questions from the audience). Anyway, if you’re interested, I would be happy to forward info to you. You can contact me at crazymermaid@live.com if you’re interested.


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